Updated: 26.10.2022
We are now, not only, fighting for my Son's life against Stage 4 Neuroblastoma Cancer,
But we recently found out that my Mom is now also fighting for her life against Breast Cancer.
Please help me in saving both their lives and give them a pain free quality of life.
Picture taken Aug 2021, in between Daniëls oncology treatment on my Mom's birthday.
I am humbly asking for help to fight these horrid cancers please.
No donation is too small.
Donations can be made to:
Account holder name: Back Baileys Buddy
Account type: Transaction Account
Account number: 15542929349
Bank name: Discovery Bank
Branch code: 679000
Or
or Use the email: baileysbuddypaypal@gmail.com
Since my son got sick early in 2020, all I did was fight.
Followed the rules. Ensured that every step in the oncology treatment was completed.
I prayed. Hoped. Cried. Rinse and repeat.
I have shared our journey more times than I can remember (or wished to share) but each time, somehow Hope slowly started to fade.
UNTIL NOW…
I’m going to continue to share our journey and story on this platform, after my friend, who started the previous page for Back Bailey’s Buddy was hacked, and Facebook decided to delete her account as well as the page that she created…
After creating a new page – Facebook bots did not like what I had to say…
Every time we get a few steps closer to a goal, something happens, and we get knocked down, but the enemy has messed with the wrong Mama!
Every time I get knocked down, I stand up stronger, hopefully a bit wiser, but definitely more determined to fight any battle that is set out to break us.
Because if God is for us, who can be against us?
Two years ago, on 6 October 2020, my son, Daniël was diagnosed with Metastatic High-Risk Stage 4 MYCN gene amplified Neuroblastoma Cancer. After being misdiagnosed multiple times over 6 months by various Doctors, Specialists and Professors.
By this time, the tumour that started in his adrenal gland, spread throughout his whole skeleton, into his bone marrow.
Prognosis: Eight Months…
There is no known cure for his diagnosis.
Our lives did not only change forever, but it took a detour filled with so many unprecedented obstacles and uncertainties. With the limited treatment options available to save my son's life and with absolutely no knowledge of what we were up against back then, I had no other choice than to tighten our seatbelts and fight through this path of destruction.
Since then, a lot of pictures were taken - proof of where we were, but our memories are blurred, and Hope was repeatedly yanked out of our sails.
(Video below: Part One, is photos from just before he got sick and the beginning of all the hospitalizations)
Video Part Two and Three is at the bottom of this post
This journey is not yet completed nor fully comprehended!
But I’m extremely grateful and blessed that two years have passed.
Despite everything that has happened, we are still here.
Thank YOU, God.
God made Daniël my son.
Cancer made him a warrior.
God turned him into a survivor. A fighter.
He fought through 8 months of Chemotherapy, 10 Operations, Autologous Stem Cell Transplant, Radiation, and 6 months of insanely high doses of medication that he took orally.
After completing this vigorous oncology treatment protocol, we got the devastating news that Daniël relapsed in March 2022.
The cancer spread. Again.
This treatment was supposed to kill the cancer.
It didn’t.
It only damaged his body cell by cell, leaving him with a list of problems his body is trying to recover from, caused by all the medicine, the medicine’s side effects, and the toxins pumped into his body after the various treatments he completed.
I’m not even going to elaborate on the severe impact it has on his kidneys, liver, hearing loss, the trauma, pain etc etc
Oh, and after all of this – he is STILL fighting cancer!!
It felt like, if the cancer is not going to kill him, the toxins sure are trying their best to.
This is not living?!...
The oncologists and mainstream medical doctors said there is nothing left to do, to fight, kill and cure this cancer. They have nothing left to save his life.
In August 2022, another MIBG scan confirmed that the cancer spread, this time it's throughout his whole skeleton, again.
The past two years, I’ve been at war with myself, the diagnoses, the limited treatment options available etc…
I have researched, prayed, cried, screamed, and researched some more.
Just as I had a gut feeling there is something else seriously wrong every time he got misdiagnosed in the beginning, I had a gut feeling there must be something else, something more that we can do.
There must be something else to manage his pain without giving him medication that will only numb the symptoms but don’t cure the cause of the excruciating pain AND leaving him to fight the list of side effects from the medicine.
I have done every single step the mainstream pharmaceutical industry said I must do to fight my son’s cancer.
Did it kill the cancer?
No?
Did it destroy his body?
Yes?
I’m not saying that there is not a place for these treatments - not at all.
But
Doctors are still just humans, and humans still make mistakes.
My frustrations turn into anger, when these mistakes lead to death of innocent children, especially when it comes to Neuroblastoma that is so easily misdiagnosed or it is diagnosed too late!!
Are there other treatment options available?
Yes, but Doctors also can’t tell you what they just don’t know…
Every time I have reached out to other specialists, doctors, nutritionists, dieticians, or therapists in the search of seeking alternative treatment to first try to manage his pain, then to try and save his life, they either did not look at Daniël’s body from a holistic point of view and what his needs are
Or the response was just:
“Let him eat what he wants, he is going to die anyway and that he must go onto morphine ASAP”…
MORPHINE!!! (I’m not going to elaborate on that topic in this post.)
I was also told in March 2022, as the cancer progressed, that he would be needing platelet and blood transfusions soon – but that would eventually just prolong the inevitable…
I kept on praying and believing there must be something more. This just can’t be the end.
No! I’m not in denial – trust me I understand his diagnosis and statistics. I just never accepted it because I know God still performs miracles. We have witnessed this repeatedly.
God is still the Healer of all healers.
Since he got sick, his pain got worse and there were days that he could barely move.
We had a lot of good days – then we had a lot of bad days.
There were days that I struggled to manage his pain with both alternative treatments and pharmaceutical medicine.
Sometimes when he cries, it feels like I can hear the cancer eating him alive.
I had to take him out of school.
He started to lose his appetite.
He lost his smile.
Until now!
Until we found hope and my prayers were answered.
We found an incredible team of specialists, experts in their field, based in America that listened to my concerns. They looked at Daniël’s specific needs and started to treat him from a holistic point of view with alternative medicine – guiding me along the way.
They are focusing not only on managing his pain but also attacking the cancer WHILST HEALING his body, cell by cell.
They are not giving up as well.
Our first goal was to make it until his birthday on 27 September 2022.
Our next goal to reach is Christmas 2022.
We are cautiously optimistic, and although he still gets tired easily, he is doing good.
His appetite is back, and he actually becomes HANGRY.
His smile is returning.
For now, we are treasuring each day and focusing on building and repairing his body before we can think about returning to school…
And to top it off – last week we were able to celebrate his 10th BIRTHDAY with a huge surprise.
All Glory to God.
BUT Our journey is not done yet and there is still a huge war to be conquered.
WE ARE STILL FIGHTING STAGE 4 CANCER SPREAD THROUGHOUT HIS SKELETON!!
I don’t know if I’ve got 6 months left with him or 60 years
But this morning we woke up to another day that was not guaranteed!
And tonight, I’ve got a 10-year-old boy (still finding his feet in this cruel world) sleeping comfortably in his own bed, happy and content in the comfort of our home next to his dog, Bailey.
Despite the obstacles we are still facing
I am beyond grateful that we are not stuck in the hospital connected to machines that go off every 10 min, weird smells, vomiting, diarrhea, surrounded with heart-breaking cries and despair.
No more pills, poking needles and covid tests
No more side effects and another pill to numb that side effect....
No more platelet and blood transfusions
No more losing hair
No more flushing ports
No more anesthesia
No more nose bleeds or skin peeling off
The list just goes on…
I am humble, grateful, and thankful for these miracles. I believe this is the meaning of divine intervention.
We still have each other and that is all that matters.
I don’t know what the future holds
But I do know Who holds the future.
And at the end of the day, where there is hope
There is life!
Please join us on our journey in fighting this battle but also for updates on him and the treatment.
Please help me in raising funds to help Daniël fight this horrid cancer and to give him a quality pain free life.
PLEASE HELP ME TO SAVE MY SON’S LIFE AND TO TAKE HIS CHILDHOOD BACK FROM CANCER. PLEASE HELP ME TO GIVE HIM A PAIN FREE QUALITY LIFE.
I am still struggling to generate an income and to get my company back on track. Cancer does not come with instruction manuals. The days are filled with uncertainties, pain and destruction, which makes it extremely difficult to plan a day and keep to schedules and attend meetings whilst taking care of Daniël’s physical and emotional needs.
Raising these funds will assist me immensely with the overwhelming emotional and financial strain it has on me to cover all the expenses we have:
Outstanding medical accounts,
Daniël's extremely expensive dietary requirements and supplements,
Assist me in keeping a roof over our heads &
Being able to continue paying for the alternative treatment and consultations fees for the specialists based in America, for both Daniël and my Mom.
Although the treatment itself is affordable compared to the millions of Rands spent on the oncology protocols, the shipping costs of getting the alternative treatment to him and the exchange rate is making it difficult for me to afford.
Edited: 26.10.2022
I urgently need $3500 USD before end of October.
(depending the exchange rate its R 63 000.00)
This amount includes the shipping fees and so that Daniël can continue his treatment for the next two months and my Mom can immediately start with her protocol and treatment for two months.
I am humbly asking for help please. No donation is too small.
Donations can be made to:
Account holder name: Back Baileys Buddy
Account type: Transaction Account
Account number: 15542929349
Bank name: Discovery Bank
Branch code: 679000
Or
or Use the email: baileysbuddypaypal@gmail.com
Or
Thank you for EVERYONE that has been part of the journey so far, supporting me in so many ways. I would’ve never been able to do this without you. It surely takes a village to raise a child.
Please share as far and wide as possible.
Please continue to lift Daniel up in your prayers.
Thank you so so much for your time reading and sharing this.
All my love
Elani
"For he is the living God and he endures forever; his kingdom will not be destroyed, his dominion will never end. He rescues and he saves; he performs signs and wonders in the heavens and on the earth. He has rescued Daniel from the power of the lions."
Daniel 6: 26-27